Tuesday, January 12, 2010


Jessie went for a six month check today with her primary care physician and the report was good. She hasn't gained too much weight from the Florinef and, as you know, is becoming much more active. We're going to try to wean her at a snail's pace from the Lyrica over the next 12 months. The general consensus is that she will be on Florinef and Pamelor for an eternity, but she may be fine without the Lyrica.

We won't begin the weaning process for another few weeks because we're heading back to Virginia this week for five days and she always overdoes it a bit when she's around friends. We'll wait until her system has a chance to level off after the trip. If she lowers her dose now, we won't know if the side effect is from that or from playing too hard. So it's best to wait. After that, I'm going to decrease the Lyrica from 25mg twice a day to only once at night. If that goes well, we'll see about reducing it a little more after six months at that dosage. It sounds like so little, but we're both very excited to try it.

The doctor asked what we are planning for Jessie's education next fall. I think that the way this has worked out (junior year at home online), a slow transition back will be easiest. She'll only need one more high school credit her senior year and there's a university about 20 minutes away. If we're lucky, she can pick up a few credits there on a part-time basis. That will give us a decent indication as to whether or not full-time college is within her reach.

It's overkill, I know, but as I said, we're going back to Virginia on Thursday for a long weekend. I'll be house/pet sitting. Wes is living there now and we will get to see him. I'm not only weaning Jessie from a medication, but Jeff and I are being weaned from our son. How's it going? I'm okay, Jeff's not so great. He misses his buddy.

I'm holding my breath right now, though, because we may have to buy a car for him. He HAS to have a car and his truck, which is about to cross the 200K mark, is making seriously scary noises. AGHH! I hope it's not too costly because at this point, you don't want to sink $1000 into an already old truck. I guess, as with everything else, I'll count our blessings and cross that bridge if we come to it, right? Right.

2 Reactions:

Sue Jackson January 12, 2010 at 12:54 PM  

That's great news that Jessie is doing so well! I hope it goes well weaning her off the Lyrica (that's for pain, right?). And, lots of kids and teens DO eventually outgrow their CFS and OI and get off the Florinef and go on to live normal lives - we can hope!!!


Renee January 12, 2010 at 1:05 PM  

Such good news for your daughter Jessie!

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