living chronically: ME/CFS: What It Feels Like

ME/CFS: What It Feels Like

Saturday, August 29, 2009

Take a few minutes (well actually 9:18) to view this video. Thanks.

Video provided by sleepydust.net

2 Reactions:

Joanne, August 30, 2009 at 3:21 AM: Hi Lori I don't think I posted on your site before but I think I may have seen your name on other ME/CFS sites.
I have just been reading your daughter's story and it is so like so many others that have been later diagnosed with Lyme Disease.
You may have considered this already but there are not many mainstream doctors who are really aware of the complexities of Lyme. I could tell you so many reasons why you should get this checked out by a Lyme literate medical doctor but first have a good read through the sites on my blog on the right and my lyme story on the bottom right.
http://joanne-orangecottages.blogspot.com/
You are lucky that one of the best Lyme doctors Joseph Jemsek has a clinic not sure if it is North or South Carolina. Although he is very expensive I am in touch with patients who travel from UK to see him.
Have a good read you will be surprised what you find out and I hope you don't mind me suggesting this.
My friends daughter had ME/CFS diagnosis and was bed ridden for most of 9 years when they realised that blood tests were so unreliable and did further testing at more expert labs which confirmed Lyme she was treated on antibiotics and now works in France working in a bar studying for OU skiing by day and partying into the night at aged 21.
Good luck in finding what works for your daughter.
Lori P, August 30, 2009 at 4:32 AM: Thanks so much, Joanne. I'm heading over to read now. Glad we found one another.

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