An Update

Thursday, October 14, 2010

living chronically cfids

Good Lord - I haven't posted since May. For shame. For shame.

Thought I'd add a little update and let you know that I still lurk around here and there. Personally, work is keeping me busy, especially at this time of year. Seriously, I was thinking about Christmas in September. Sick.

I'm happy to report that in terms of CFIDS, Jes is doing well. She's still on her regular medication and we continue to try to whittle away a bit of it. For now, we're trying to rid our lives of the Lyrica.

She continues to have occasional migraines. BUT she hasn't had to take the heavy duty medication OR visit the ER in over a year. That's improvement people. If she gets a migraine, she can usually sleep it off.

Aside from that, she has a boyfriend, runs around constantly, drives her parents nuts, is finishing her senior year at home, and just took the SAT.

I'm saying this because there is hope.


Now I'm going to throw something in your general direction. If you are home bound and/or chronically sick, helping others always seems to lift the spirits. Heck, it lifts the spirits whether you're sick or healthy. Unfortunately it's hard to do when you're confined much of the time. This is an alternative you should look into. I've recently become involved with a group called:


Visit this site. They're better at getting the point across, so I will leave it at that. Learn about dropping love bombs. It'll do your heart good to so easily make someone's day brighter.

Until next time, you're always in my thoughts and prayers.

8 Reactions:

Sue Jackson October 14, 2010 at 4:12 PM  

HURRAY!!! So glad to hear that Jes is still doing well and is living a semi-normal life. I was wondering whether she went back to school this year or was still working from home. It sounds like you found the right solution for her...and her social doesn't seem to be suffering!

Thanks for sharing the good news and hope - we always need it!


Anonymous,  October 17, 2010 at 9:37 AM  

So very happy to hear that your gorgeous daughter is doing better! Yes, there is ALWAYS hope! I am an example of how the impossible can happen, and a pwc can get better, and happier! Thanks for the link to that site! Will check it out!

cfswarrior October 19, 2010 at 6:19 PM  

I was moved to tears upon reading your post. I'm so glad to hear Jes is doing better.

What an adorable picture too!

I'm going to check out the link you posted.

Thanks for reminding us there is hope...

Forgetful Girl October 23, 2010 at 9:06 AM  

What a wonderful post! I'm so pleased she is doing so well! Sending positive thoughts that your daughter continues to have good health and live an amazing life- she deserves it!

Brian November 8, 2010 at 11:22 AM  

Glad to hear that everything seems to be going well for you and your family.

Amanda January 1, 2011 at 8:47 PM  

Thank you for linking to It Starts With Us. I just joined - just what I need for the new year. :)

Glad Jes is doing well. Did you not like the Lyrica? I'm on it for my fibromyalgia, and my pain specialist is trying to increase it.

Thank you the most for reminding us that there is ALWAYS hope - I needed that today.

Hugs, Amanda

Alycia (Crowley Party) June 1, 2011 at 1:38 PM  

love that picture. love this post. love your blog :)

Annie September 23, 2011 at 3:20 PM  

Lori, just came to your blog via Sue Jackson's post about how your beautiful girl has may get a few comments over the next days! Don't even know if you're checking in anymore but just wanted to let you know that I'll be reading all you've documented on the blog carefully as my gorgeous 12 year old girl heads along the CFS path. I'm particularly interested in the fact that she completed schooling at home as my daughter heads off to secondary school next year and I can see how stressful that's going to be. I'm blogging in Australia about my daughter's (and my) journey over at and hope (plan!) to post one day about how she's recovered too. My daughter has a blog too if Jes has a moment to drop by..but I understand if she wants to leave all that behind her now! Anyhow thanks again for leaving all your hard earned wisdom out in the blogosphere and best of luck on the path forward for you all : )

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