is it possible?

Sunday, May 30, 2010

living chronically cfs/me

Is it possible that she will be one of the lucky ones? When I talk to people about her illness, which is pretty rare these days, I always add that she is one of the lucky ones. Relatively speaking, things are going extremely well. Her life is practically normal given the fact that she no longer attends regular school and is highly medicated. I really can't and won't complain. She is unbelievably social - so much so that I lose sleep, so I guess we're normal! We're counting our blessings and, as always, remaining hopeful.

living chronically cfs/me teens

and speaking of being medicated...

See the highly medicated box? I almost bought this for her yesterday but didn't for only one reason. You may think that the reason is that it's kinda, sorta odd to put a pillbox holder that is sparkly and has "highly medicated" written across the top into the hands of a 17 year old. Well, that's not the reason. I didn't buy it because it was $29.00. $29.00! Anyway, it was sized perfectly - large enough compartments to hold her pills, a.m. and p.m., AND the best thing (aside from the fact that it was kind of cute) was that it was small, about 5-6 inches by 4 inches, zipped closed and housed a perfectly sized pillbox for traveling. Call me crazy, but I loved it. (I'm going to have to figure out how to make one of those suckers.)

So, for the medication. Believe it or not, we FINALLY weaned her off of her morning dose of Lyrica. Hooray! It only took five months, but it finally took. She's now on Lyrica at night, 25 mg. She still takes the Pamelor, 50 mg at night, Florinef twice a day, and a multitude of supplements. Dropping that Lyrica was a milestone. No more splitting capsules - Yay!

I sincerely think of you all often and hope you're enjoying life.
Stay happy and full of hope. Until next time.

11 Reactions:

Forgetful Girl May 30, 2010 at 9:39 AM  

Glad to hear she's still doing so well!

Shelli May 30, 2010 at 9:49 AM  

I am so happy for her. I hate to think of all the CFS could have stolen from her life. Yes, she is lucky indeed, not least of all having a mom like you. Love the pill box! I might have to go looking for something like that for myself. Hope you are doing well, too.

Anonymous,  June 3, 2010 at 11:05 AM  

As a CFIDS sufferer, I have to ask what meds your daughter is on, and why? My sympathies and empathies for your beautiful girl. :->

Laurel June 6, 2010 at 5:56 AM  

So glad Jessie continues to do well! That has to be such a relief and joy for you both. She's such a beautiful girl. I hope the improvements continue for her!

LazySusan June 7, 2010 at 7:54 PM  
This comment has been removed by a blog administrator.
Annie June 14, 2010 at 6:53 AM  


Fingers crossed that it stays this good for the long run! xoxoxo

Fibro Viv July 3, 2010 at 1:12 PM  

She looks absolutely beautiful! Wishing you and yours the best!

Sue Jackson July 6, 2010 at 5:15 PM  

Well, I see that this is a really old post, but I've been way behind ever since my MIL died, then end of school, vacation, etc.

Anyway, I'm so thrilled that Jessie is doing so well. She gives me hope for Jamie and Craig! Maybe Jamie will improve with the Lyme treatment.

I totally understand your liking the pill container - how cool! Between the 3 of us, we juggle 9 different weekly reminder pill boxes, and I would love to find a simpler system, especially when we travel.

Hope you're all enjoying the summer.


elisabeth July 13, 2010 at 10:44 AM  

Hello! This is my first time commenting, but I just wanted to add my congratulations! It is always wonderful to hear good news when someone has been struggling for so long.

Also, I am *begging* you for the name of the store or the brand that makes those cute medical bags!

Lori July 13, 2010 at 12:18 PM  

Oh my, Elisabeth. I will try to remember the name of the boutique and let you know. I didn't get the brand, but am sure I can call them to find out.

Rachel August 27, 2010 at 8:32 PM  

Hello m'lovely,

You have a beautiful daughter,
you must be so proud.
I wanted to thank you for the wonderful comment you left on my blog - it really lifted my spirits.

I can only hope your days are as beautiful as you've helped mine become.

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