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Showing posts with label ME/CFS. Show all posts
Showing posts with label ME/CFS. Show all posts
Dr. Oz...CFS...Inaccuracies?...Read On
Sunday, October 25, 2009
I'm posting a link to Sue Jackson's blog, Learning to Live with CFS. Sue posted her response to a recent Dr. Oz segment about chronic fatigue - interesting stuff. Read up and offer your opinion.
Read more...F-F-F-F-Friendship F-F-F-Friday
Friday, October 23, 2009
That's my scary, it's almost Halloween, title. Creative, don't you think?
I only have a couple of blogs to share today as I've been a little slacker this week. Been working on my other job. How's it working, you say? NOT TOO GOOD. I've been painting a portrait this week and I'm now reminded of exactly WHY I hate to paint portraits. Moving along...
Sick Momma, by Aviva. I love her writing style and sense of humor.
Off the Wheaten Path, by Mrs. McKracken aka Margo Anderson. Mrs. McKracken? Yes, you heard it right. Love the name. Margo also writes about autoimmune disease.
*Brief update*
Happily, Jessie is doing quite well this week. Last weekend's adventure had practically no effect. Could she be pulling out of the woods? Possibly. I think that pulling out of school and dropping that difficult routine may have done the trick for now.
Jessie's doing her schoolwork at home during the day and is able to see friends more often. It's a good thing! Works wonders for that laser-eyed, "Don't look my way or speak to me or I'll scream" attitude. She has been busy for the past two nights and will be babysitting 4 year old twins this afternoon for a couple of hours. Sounds like a regular, spoiled rotten, obnoxious, killing her parents, happy teenager to me.
Read more...
X-Associated Neuroimmune Disease
Wednesday, October 21, 2009
Check out this interesting article in the NY Times
Looks like we could have a new name. What do you think of it?
A bit more legit than the last one, wouldn't you say?
Read more...
ABC News - XMRV Retrovirus
Monday, October 19, 2009
Click on the link below to view the new video.
Shared via AddThis Read more...
IIItttt'ssss Friendship Friday!!
Friday, October 16, 2009
A little lame? Could be, but I'm having trouble coming up with a regular title. So until I do, I'll will continue with the "HEERREE'S Johnny" routine. So sue me...
Moving along, I've found a few new friends this week. I'm going to share the love and wholeheartedly encourage you to do the same. Feels good.
On the ME/CFS front I've found:
Fibro Viv lives in Texas and you can visit her at Invisible Illness CFIDS/FMS.
Catherine Morgan is a writer and nurse with CFS. She's over on Wordpress at Living With Chronic Fatigue Syndrome
Another Wordpress discovery: Rachel at the Blue Coffee Mug
AND on the Celiac front, I've found:
Wasabimon, a beautifully colorful, fun blog.
and last, but certainly not least, one of my original faves...
Brian, the fireman, over at Fire and Salt.
Pay all of these good folks a visit. They really are pretty nice. :)
Finally and perhaps most importantly:
Pray for me. Pray hard for me. Nathan, aka Satan himself, is flying in for a weekend visit. Oh, I'm just kidding. I love Nathan to death - good kid. I will, however, be braving Atlanta's wonderful 5:00 rush hour traffic as his flight arrives (hopefully on time) at 6:00. It's sure to be a lively, fun, action-packed weekend. Pray for me. I'm not joking. Teenagers in love, it's an unnerving thing for 40-50ish parents.
Read more...
What Were You Doing?
Tuesday, October 13, 2009
It was the first weekend of November, 2005. Jessie had recently finished fall soccer. At 12, she was becoming a much better player - aggressively chasing and maneuvering the ball. She was having a great time with weekly horseback riding lessons and occasional mountain biking excursions with her dad and brother.
On Friday, Jeff and I went away for the weekend and Jessie eagerly went to spend a few days with her best friend, Sarah. On Saturday, we got the call that Jes had become sick. Could it be the flu or mono? Another friend was at home sick with mono and Jessie remembered that they had recently shared a water bottle at school. Assuming that she had mono, we kept her at home. The following week, we took her to the doctor, where she tested negative for mono.
Two weeks later, her friend was well and back in school. Jessie's fever had finally subsided, but the headaches and flu-like symptoms were relentless. Two months later, confined to her bed or sofa and beginning physical therapy, we were told that Jessie had tentatively been diagnosed with something called Chronic Fatigue Immune Dysfunction Syndrome. We were so happy to have a diagnosis! We knew so little then. We had no idea that on that first weekend of November, the course of our daughter's life would be changed.
For more information and to learn how you can help,
visit SolveCFS.org.
CFS, Homecoming, Road Trip, Movie, and a Virus
Monday, October 5, 2009
It's over. We're home. Cleanup after two very nasty males and enough laundry to clothe an army has been completed.
It's been an eventful week! Jessie (above in the blue) and I went to Virginia so that she could go to a homecoming dance with friends from her former school. Unfortunately, her date became sick within 15 minutes of arriving and had to leave. Fortunately, she was surrounded by tons of friends so she still had a blast - sans the boyfriend, who is, by the way, NOT the happy dude in the white bow tie. (Isn't he a cute little riot?)
The day after we left for Virginia, hubby became sick with a nasty virus that we thought was the flu. He even went to the doctor and was given Tamiflu. He was completely over it and back at work in three days. While on the way home from Virginia, Jessie became sick with the exact same virus. We went to the doctor and she tested negative for the flu. This will be the sixth day and I hope she wakes feeling better. The fever is gone, but a nasty cough remains - along with the typical CFS backlash of achy muscles. Of course, we half expected the CFS flare after such an active long weekend.
Oh, one more thing. Jessie talked me into reading the Twilight series last year. We're not fanatical fans, but we are looking forward to the second movie, New Moon, which comes out on November 20th.
Here's the trailer. Any Twilight fans out there?
Read more...
Boys and School and Shots
Friday, September 11, 2009
Interesting title, isn't it?
First, the boys:
This is my son, Wes - the one who doesn't like being written about or photographed. I love this picture of him. (He's not the bald one or the bearded one - I'm not THAT old) This picture was taken as he was racing in a mountain bike competition in Snowshow, WV a couple of weeks ago. Isn't the view great? And don't you love the red zebra outfit? :)
School:
Jessie received her school stuff yesterday and, even after assuring me that she doesn't need any help and to PULEEZE leave her alone, I tossed and turned all night long worrying - as every good mother should. Just doin' my job. Her English Lit and Spanish III are completely online and the other courses (Advanced Algebra/Trig, US Government and Chemistry) are online with an actual textbook. It'll be an interesting year.
Now, the shots:
Who out there rushes out to get a flu shot? I've heard and read both ways for CFS patients. For us, Jes has had a flu shot with no side effects each year since she's been sick. So I think she'll be getting one, especially since it's so bad this year. Then she'll get the other when it comes out in October. Are you getting the shot?
ME/CFS: What It Feels Like
Saturday, August 29, 2009
Take a few minutes (well actually 9:18) to view this video. Thanks.
Video provided by sleepydust.net
Read more...
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