tag:blogger.com,1999:blog-1421497712049366866.comments2022-11-20T04:23:20.204-08:00living chronicallyLori Phttp://www.blogger.com/profile/01808703279193470654noreply@blogger.comBlogger200125tag:blogger.com,1999:blog-1421497712049366866.post-15492670012894058052014-06-27T07:17:21.738-07:002014-06-27T07:17:21.738-07:00So inspiring! This is great to hear! I had to look...So inspiring! This is great to hear! I had to look up what CFIDS was...chronic fatigue, right? People come up with so many excuses as to why they can't pursue their dreams, but truly strong people don't have time for excuses. They're too busy going for it!Stephanie Farishttps://www.blogger.com/profile/10461865229341760836noreply@blogger.comtag:blogger.com,1999:blog-1421497712049366866.post-6357883882975569412012-09-08T06:07:19.657-07:002012-09-08T06:07:19.657-07:00Thanks Sue. I feel the same way!
And to answer y...Thanks Sue. I feel the same way!<br /><br />And to answer your questions...I'm certain she had CFS. She had all of the markers beginning with the mono-like virus which started it all when she was 12 (details in "our story") In all honesty, I asked myself the same question many times, but couldn't explain too many of her symptoms which were textbook. She was even "officially" diagnosed at Duke University. <br /><br />Just NEVER forget - recovery is possible.<br />Hugs.Lori Phttps://www.blogger.com/profile/01808703279193470654noreply@blogger.comtag:blogger.com,1999:blog-1421497712049366866.post-55326660984353505872012-07-09T16:11:55.809-07:002012-07-09T16:11:55.809-07:00Hurray, Hurray, Hurray!!!
I knew Jess was doing w...Hurray, Hurray, Hurray!!!<br /><br />I knew Jess was doing well, but this is spectacular news - and no meds, even! Awesome!<br /><br />I feel like I know you and Jess, even though we've never actually met in person. I am so thrilled for your whole family!<br /><br />Now a question...do you think she really did have CFS or do you think it was all celiac disease? Just curious what your thoughts were. Of course, I suppose the celiac could have been the trigger for CFS, huh?<br /><br />It's so hard to sort out cause and effect in these illnesses...but that doesn't stop me from trying - lol<br /><br />I am so happy for you guys!!<br /><br />Love,<br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-1421497712049366866.post-5556509760140695492012-06-19T01:36:09.894-07:002012-06-19T01:36:09.894-07:00So happy for you and your daughter! Hope she's...So happy for you and your daughter! Hope she's enjoying university.Anonymoushttps://www.blogger.com/profile/11203787363512693325noreply@blogger.comtag:blogger.com,1999:blog-1421497712049366866.post-72722063501744437132012-06-15T09:02:41.954-07:002012-06-15T09:02:41.954-07:00Thank you for the update on your beautiful daughte...Thank you for the update on your beautiful daughter! I'm so glad she is holding her own! You must be beside yourself with joy!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1421497712049366866.post-4588205373483688852011-09-23T15:20:41.909-07:002011-09-23T15:20:41.909-07:00Lori, just came to your blog via Sue Jackson's...Lori, just came to your blog via Sue Jackson's post about how your beautiful girl has recovered..you may get a few comments over the next days! Don't even know if you're checking in anymore but just wanted to let you know that I'll be reading all you've documented on the blog carefully as my gorgeous 12 year old girl heads along the CFS path. I'm particularly interested in the fact that she completed schooling at home as my daughter heads off to secondary school next year and I can see how stressful that's going to be. I'm blogging in Australia about my daughter's (and my) journey over at www.parentingcfs.com and hope (plan!) to post one day about how she's recovered too. My daughter has a blog too www.teenagecfslife.com if Jes has a moment to drop by..but I understand if she wants to leave all that behind her now! Anyhow thanks again for leaving all your hard earned wisdom out in the blogosphere and best of luck on the path forward for you all : )Anniehttps://www.blogger.com/profile/09677903765123497474noreply@blogger.comtag:blogger.com,1999:blog-1421497712049366866.post-58572084349429030372011-07-21T12:50:34.049-07:002011-07-21T12:50:34.049-07:00Thanks for stopping by my blog & even more so ...Thanks for stopping by my blog & even more so for your appreciation for my blog & recipes. Would be glad to be be linked by your blog/ website & nice to know you too. Cheers!! AnamikaTaste Melangerhttps://www.blogger.com/profile/17196601318524357251noreply@blogger.comtag:blogger.com,1999:blog-1421497712049366866.post-24577289246784560352011-06-01T13:38:00.213-07:002011-06-01T13:38:00.213-07:00love that picture. love this post. love your blog ...love that picture. love this post. love your blog :)Alycia Grayce (Crowley Party)https://www.blogger.com/profile/16438358678220412938noreply@blogger.comtag:blogger.com,1999:blog-1421497712049366866.post-92074267278526557422011-05-16T01:04:57.124-07:002011-05-16T01:04:57.124-07:00Hello, It looks like you don't really post any...Hello, It looks like you don't really post anymore on here! But my heart stopped when I read this, I too, suffer from CFS! I have done since age 12 and I'm not nearly 22 so nearly 10 years, as much as I know its horrible, my heart feels glad to have found this blog even if you are no longer posting! Its like I found someone who can completely understand when most the world cant! Thanks for this, and also finding my blog, so I could find this! Natasha Louise xNatasha Louise Taylorhttps://www.blogger.com/profile/04212469965571268665noreply@blogger.comtag:blogger.com,1999:blog-1421497712049366866.post-71563342274490546702011-01-08T17:30:37.395-08:002011-01-08T17:30:37.395-08:00Hi Lori,
I'm so sorry that your daughter is ex...Hi Lori,<br />I'm so sorry that your daughter is experiencing all this. I was diagnosed with Fibromyalgia and CFIDS almost 30 years ago. There was so little information and therapy then.<br /><br />I have always taken the natural approach and have tried many modalities. I have fund that eliminating gluten from my diet is key.<br /><br />I am looking forward to checking out your recipes.<br /><br />I also understand the challenges of food elimination. My 10 year old daughter has life threatening food allergies to all nuts, beans, soy and various seeds. <br /><br />I believe I understand what some your daily challenges when it comes to food.<br /><br />Wishing you and your family all the best.Eydie Kuglerhttps://www.blogger.com/profile/05642024910078013224noreply@blogger.comtag:blogger.com,1999:blog-1421497712049366866.post-55463569934217792562011-01-01T20:47:16.896-08:002011-01-01T20:47:16.896-08:00Thank you for linking to It Starts With Us. I jus...Thank you for linking to It Starts With Us. I just joined - just what I need for the new year. :)<br /><br />Glad Jes is doing well. Did you not like the Lyrica? I'm on it for my fibromyalgia, and my pain specialist is trying to increase it.<br /><br />Thank you the most for reminding us that there is ALWAYS hope - I needed that today.<br /><br />Hugs, AmandaAmandahttps://www.blogger.com/profile/13671746814591549114noreply@blogger.comtag:blogger.com,1999:blog-1421497712049366866.post-53725580288950767652010-11-08T11:22:45.652-08:002010-11-08T11:22:45.652-08:00Glad to hear that everything seems to be going wel...Glad to hear that everything seems to be going well for you and your family.Brianhttps://www.blogger.com/profile/07945537746712219382noreply@blogger.comtag:blogger.com,1999:blog-1421497712049366866.post-47502809504529915672010-10-23T09:06:13.548-07:002010-10-23T09:06:13.548-07:00What a wonderful post! I'm so pleased she is d...What a wonderful post! I'm so pleased she is doing so well! Sending positive thoughts that your daughter continues to have good health and live an amazing life- she deserves it!Anonymoushttps://www.blogger.com/profile/11203787363512693325noreply@blogger.comtag:blogger.com,1999:blog-1421497712049366866.post-53329569957195794942010-10-19T18:19:51.362-07:002010-10-19T18:19:51.362-07:00I was moved to tears upon reading your post. I'...I was moved to tears upon reading your post. I'm so glad to hear Jes is doing better.<br /><br />What an adorable picture too!<br /><br />I'm going to check out the link you posted.<br /><br />Thanks for reminding us there is hope...me/cfs warriorhttps://www.blogger.com/profile/01299057722862223585noreply@blogger.comtag:blogger.com,1999:blog-1421497712049366866.post-24405170861559768382010-10-17T09:37:04.796-07:002010-10-17T09:37:04.796-07:00So very happy to hear that your gorgeous daughter ...So very happy to hear that your gorgeous daughter is doing better! Yes, there is ALWAYS hope! I am an example of how the impossible can happen, and a pwc can get better, and happier! Thanks for the link to that site! Will check it out!<br />JudyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1421497712049366866.post-41600214599088511772010-10-14T16:12:31.531-07:002010-10-14T16:12:31.531-07:00HURRAY!!! So glad to hear that Jes is still doing...HURRAY!!! So glad to hear that Jes is still doing well and is living a semi-normal life. I was wondering whether she went back to school this year or was still working from home. It sounds like you found the right solution for her...and her social doesn't seem to be suffering!<br /><br />Thanks for sharing the good news and hope - we always need it!<br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-1421497712049366866.post-6383122436974975442010-08-27T20:32:45.161-07:002010-08-27T20:32:45.161-07:00Hello m'lovely,
You have a beautiful daughter...Hello m'lovely,<br /><br />You have a beautiful daughter,<br />you must be so proud.<br />I wanted to thank you for the wonderful comment you left on my blog - it really lifted my spirits.<br /><br />I can only hope your days are as beautiful as you've helped mine become.<br />xxxRachelhttps://www.blogger.com/profile/14405678437328568360noreply@blogger.comtag:blogger.com,1999:blog-1421497712049366866.post-89263156397814802372010-07-13T12:18:15.305-07:002010-07-13T12:18:15.305-07:00Oh my, Elisabeth. I will try to remember the name...Oh my, Elisabeth. I will try to remember the name of the boutique and let you know. I didn't get the brand, but am sure I can call them to find out.Lori Phttps://www.blogger.com/profile/01808703279193470654noreply@blogger.comtag:blogger.com,1999:blog-1421497712049366866.post-47020004831786836272010-07-13T10:44:23.325-07:002010-07-13T10:44:23.325-07:00Hello! This is my first time commenting, but I jus...Hello! This is my first time commenting, but I just wanted to add my congratulations! It is always wonderful to hear good news when someone has been struggling for so long.<br /><br />Also, I am *begging* you for the name of the store or the brand that makes those cute medical bags!elisabethhttps://www.blogger.com/profile/04409662689998783717noreply@blogger.comtag:blogger.com,1999:blog-1421497712049366866.post-79895766748005750312010-07-06T17:15:41.179-07:002010-07-06T17:15:41.179-07:00Well, I see that this is a really old post, but I&...Well, I see that this is a really old post, but I've been way behind ever since my MIL died, then end of school, vacation, etc.<br /><br />Anyway, I'm so thrilled that Jessie is doing so well. She gives me hope for Jamie and Craig! Maybe Jamie will improve with the Lyme treatment.<br /><br />I totally understand your liking the pill container - how cool! Between the 3 of us, we juggle 9 different weekly reminder pill boxes, and I would love to find a simpler system, especially when we travel.<br /><br />Hope you're all enjoying the summer.<br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-1421497712049366866.post-73227842386833299232010-07-03T13:12:26.620-07:002010-07-03T13:12:26.620-07:00She looks absolutely beautiful! Wishing you and yo...She looks absolutely beautiful! Wishing you and yours the best!Fibro Vivhttps://www.blogger.com/profile/06036216162047536837noreply@blogger.comtag:blogger.com,1999:blog-1421497712049366866.post-51257113705672639682010-06-14T06:53:19.326-07:002010-06-14T06:53:19.326-07:00I AM SO HAPPY FOR HER!!
Fingers crossed that it s...I AM SO HAPPY FOR HER!!<br /><br />Fingers crossed that it stays this good for the long run! xoxoxoAnniehttps://www.blogger.com/profile/14910318186594054287noreply@blogger.comtag:blogger.com,1999:blog-1421497712049366866.post-72244031628042424082010-06-07T19:54:16.673-07:002010-06-07T19:54:16.673-07:00This comment has been removed by a blog administrator.LazySusanhttps://www.blogger.com/profile/10599311806263532104noreply@blogger.comtag:blogger.com,1999:blog-1421497712049366866.post-28305720946250823382010-06-06T05:56:36.277-07:002010-06-06T05:56:36.277-07:00So glad Jessie continues to do well! That has to b...So glad Jessie continues to do well! That has to be such a relief and joy for you both. She's such a beautiful girl. I hope the improvements continue for her!Laurelhttps://www.blogger.com/profile/01688914443102913569noreply@blogger.comtag:blogger.com,1999:blog-1421497712049366866.post-22746866371048481332010-06-03T11:05:07.450-07:002010-06-03T11:05:07.450-07:00As a CFIDS sufferer, I have to ask what meds your ...As a CFIDS sufferer, I have to ask what meds your daughter is on, and why? My sympathies and empathies for your beautiful girl. :->Anonymousnoreply@blogger.com